Music and Memories Unite ADDF Community at Memories Matter
Event Benefiting Alzheimer’s Research
New York, NY (April 15, 2021) – The Alzheimer’s Drug Discovery
Foundation (ADDF) presented its Fourth Annual Memories Matter
Event via live stream on Wednesday, April 7. In a special
evening of stories and songs, the event united Alzheimer’s
advocates, caregivers, families, and supporters around the
ADDF’s mission to conquer Alzheimer’s disease, raising over
$850,000 in donations to advance its research efforts.
The theme of this year’s Memories Matter was “Music and
Memories.” The program opened with a musical number from ADDF
board member Mitchell Kaneff, Memories Matter Founding Chair Ian
Ginsberg, and Young Professionals Committee member Alec
Ginsberg, who came together for the first time to explore the
role music plays in connection to memory, and shared personal
stories of families impacted by Alzheimer’s disease. The event
also featured special guest appearances from Emmy and Tony award
winner Bryan Cranston and ADDF Board of Governors Co-Vice Chair
and Secretary Randal Sandler, as well as an ensemble of Broadway
singers performing the worldwide hit song “Memories” by Maroon 5
as a tribute to those who have been lost to the disease and to
the power of memories.
The ADDF, the only nonprofit solely devoted to finding new drugs
to prevent, treat and cure Alzheimer’s, hosts their annual
Memories Matter event to raise awareness of the devastating
impact of this disease on patients, caregivers and families,
particularly younger generations. The personal stories and
discussions of Alzheimer’s shared during the event highlight the
need to change the course of this disease with better drug
therapies. The event was founded by ADDF Board Members Wendy
Wilshin and Stephanie Ginsberg, who both lost their mothers to
Alzheimer’s disease.
Ginsberg shared, “At my mother’s funeral, memories of her voice
and who she truly was came flooding back. Memories matter. We’re
all here today because we want to see Alzheimer’s disease become
a distant memory.”
Wilshin continued, “Having the ability to connect to our past
gives us our future. After a long and difficult year, we wanted
to focus on things that give us hope. The power of music could
not be overlooked. Music triggers parts of the brain that evoke
emotions, and it's one of the last things to be destroyed by
this disease.”
ADDF CEO Mark Roithmayr noted how many of the ADDF’s volunteers
and donors are led to its mission by their deep personal
connections to the disease, saying, “A nonprofit is only as good
as its family and friends.” Roithmayr was joined by Dr. Howard
Fillit, ADDF’s Founding Executive Director and Chief Science
Officer, who spoke to the science behind our mission and shared
his perspective on what memories and music mean, both as a
clinician and as someone who saw the impact of songs on his own
father as he suffered from Alzheimer’s disease.
Bryan Cranston, who lost his mother Audrey ‘Peggy’ Sell to
Alzheimer’s in 2004, said, “Alzheimer's is a thief. It steals
your loved ones away from you; and we have to find a way to stop
this thief. It is vitally important that we continue research,
treatment, and explore the world of drugs and how to mitigate
the effects of Alzheimer's. The ADDF is doing just that, and we
have to support them in their quest to not only take care of the
people who are already afflicted with Alzheimer's, but those who
will become afflicted with Alzheimer's. Their diligence in
finding a cure; that's really the goal.”
Randal Sandler shared how he watched both his mother and
mother-in-law suffer from the disease. “My mom was an avid
volunteer of her time. I’m most proud of the time I’ve spent
over the past years helping this organization to meet its
audacious goal of ending Alzheimer’s in our lifetime because
that motivation comes from my mom. It’s incredibly gratifying
that the ADDF is at the forefront of a lot, if not all, of the
most innovative ideas in Alzheimer’s research.”
As
CEO Mark Roithmayr noted in his remarks, the ADDF was founded on
three pillars: diagnostics, prevention, and drug discovery.
Today, those three pillars still serve as our true north,
especially as the ADDF’s focus has pivoted from pre-clinical to
clinical research. 80% of the clinical trials we fund are now in
phase 2, the phase that tests for efficacy and safety. In
addition, the ADDF has one of the largest and most diverse
clinical trial portfolios in the world, with 35 active trials
targeting more than seven pathways that go awry during the aging
process. In the next year alone, we’re expecting results from
six of our most promising phase 2 trials.
Following the event’s first-time virtual live auction, which
raised over $100,000, siblings Matt and Caitlin Fay, two members
of ADDF Young Professionals Committee (YPC), a group dedicated
to raising awareness and funds for Alzheimer’s research,
explained how they joined together after their father was
diagnosed with the disease to raise funds through a series of
events among a group of 20- and 30-year-old professionals. The
Fay siblings’ fundraisers raised over $15,000 to support the
ADDF.
“Having a network of people through the YPC and ADDF putting
their time and money towards the Alzheimer’s cause to support my
dad and others suffering from this disease is so empowering. If
we continue to put our efforts all together, the possibilities
are endless,” said Caitlin Fay.
About the Alzheimer’s Drug Discovery Foundation
Founded in 1998 by Leonard A. and Ronald S. Lauder, the
Alzheimer's Drug Discovery Foundation is dedicated to rapidly
accelerating the discovery of drugs to prevent, treat and cure
Alzheimer's disease. The ADDF is the only public charity solely
focused on funding the development of drugs for Alzheimer's,
employing a venture philanthropy model to support research in
academia and the biotech industry. Through the generosity of its
donors, the ADDF has awarded over $168 million to fund more than
650 Alzheimer's drug discovery and biomarker programs and
clinical trials in 19 countries. And 100% of every donation
funds drug research programs. To learn more, visit http://www.alzdiscovery.org.