Smokey Robinson, the Grammy® Award winning member of
the Rock and Roll Hall of Fame and “King of Motown,”
will be performing a one-night only benefit concert
for Dana’s Angels Research Trust (DART) on
Friday, May 14, 2010, at the Palace Theatre
in Stamford, Conn. A Gala Cocktail Reception
including celebrities will be held prior to the
concert at 6:30 p.m. Tickets to the full Gala
Reception and Concert start at $300 and are
available by invitation only. Invitation requests
can be made online at www.DanasAngels.org, by
emailing
tickets@danasangels.org
,
or by calling DART at 203-861-2063. Tickets for the
general public to the concert only will be $95.00,
$75.00 and $50.00 and will be available online at
http://www.tickets.stamfordcenterforthearts.org
.
The Smokey Robinson DART Benefit Gala
and Concert will be co-hosted by Kathie Lee and
Frank Gifford, who are long-time supporters of DART
and who have co-hosted previous DART benefits. Wine
and hors d’oeuvres will be served at the Gala
reception preceding the concert and there will be a
live and silent auction with fabulous one-of-a-kind
items to bid on.
Dana’s Angels Research Trust (DART) is a
charity dedicated to funding medical research,
education, and care for the treatment or cure of
Niemann-Pick type C disease (NPC) and other similar
genetic diseases. NPC is often called children’s
Alzheimer’s. DART’s efforts may help millions of
people (adults and children) suffering from NPC,
HIV/AIDS, Alzheimer’s, heart disease, stroke, and
other disorders that appear to be related to the
metabolism of cholesterol. Although children and
some adults worldwide are afflicted, research has
been extremely limited primarily because of
insufficient funding, the smaller population of
those affected, and a lack of public awareness.
Currently, children with NPC rarely live past their
early teens, and there is no cure for NPC. Today,
there are limited treatment options, with
experimental therapies and medications being tried
with hope that there will be progress. DART was
founded by the Marella family of Greenwich. Two of
the Marella’s four children, Dana and Andrew, are
afflicted with NPC.
For
the Marella family, they knew their daughter Dana,
from the age of five, who was a happy, caring and
energetic child, had balance and learning
difficulties. Over time, Dana's visual and cognitive
abilities, and her balance became progressively
worse. After years of searching for answers to her
challenges, Dana was diagnosed in 2002 at the age of
eight with NPC. In 2004, at the age of 5, Dana's
brother Andrew, the Marella's 4th child, was also
diagnosed with NPC. Today, Dana is in a wheelchair,
no longer walks or talks and requires total care.
She currently has issues with breathing and
swallowing and is undergoing aggressive treatment
for the disease. Her brother Andrew, now age 10 and
seemingly normal, is also being treated.
The
DART Benefit Gala and Concert on May 14 will feature
the legendary
Smokey Robinson, who has had more than 37 Top 40
hits for Motown Records and won a Grammy® Award for
his song “Just To See Her” in 1987. Smokey
was a 1988 inductee into the Rock and Roll Hall of
Fame, a 1991 recipient of the Soul Train Music Award
for Career Achievement, a 1999 Grammy Lifetime
Achievement Award winner, a 2006 Kennedy Center
honoree, a recipient of a Doctorate of
Music degree from Howard University (2006), a 2009
recipient of an Honorary Doctorate degree from
Berkeley College of Music (for whom he also gave the
commencement speech), a Songwriter’s Hall of Fame
honoree and a rare double-honoree of a star on the
Hollywood Walk of Fame (as a solo artist & member of
The Miracles). Along the way, he’s also amassed the
love and respect of his peers, from being lyrically
lauded by Bob Dylan (who referred to Robinson as
“the world’s greatest poet”) to being lyrically
cited by 80s Brit-pop band ABC (on the smash hit
“When Smokey Sings”), the Beatles’ George Harrison
(“Pure Smokey”) and the Tom Tom Club (“Genius of
Love”).
“We are thrilled to have Smokey
Robinson perform for the DART Gala Benefit Concert,”
noted Phil Marella, co-founder of DART and the event
organizer. “Smokey will perform two hours of some
of his most beloved songs, such as Being With
You, Ooh Baby Baby, Just To See Her, Tears Of A
Clown, and Tracks Of My Tears, plus songs
from his new album Time Flies When You’re Having
Fun. It will be an awesome and awe-inspiring
evening.”
To date, DART has raised close to
$1.5 million toward the search for a cure for NPC.
DART is particularly proud of its commitment to a
unique therapy development approach for additional
NPC treatments called SOAR-NPC or Support Of
Accelerated Research. Working with other NPC
families and organizations, SOAR has created a
multidimensional collaborative drug development
program searching for an effective cocktail
treatment for NPC. The ambitious goal is to have at
least two or three new NPC therapies ready for
clinical trial in 2011. In addition, in January of
this year, a Food and Drug Administration advisory
panel recommended the medication Zavesca to treat
NPC. Phil Marella of DART, Cindy Parseghian of the
Parseghian Foundation, and Barb Vorpahl of the NNPDF
spoke during the public portion of the hearing. The
drugs sponsor, Actelion said the agency is expected
to decide in March whether to approve Zavesca for
treating NPC.
To
order tickets for the May 14 Smokey Robinson DART
Gala Benefit Concert or to learn more about NPC and
DART, visit
http://www.danasangels.org .
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